Miles for Menkes Disease
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Miles Owen Taylor

Miles Owen Taylor
Born: September 24, 2010 at 10:50 pm
5 pounds .7 ounces
St. Joseph's Hospital, Denver, Colorado


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Hello! My name is Miles a 4 year old who was diagnosed with a rare disease called Menkes.  Menkes disease occurs in only 1 per 50,000 to 100,000 live births in the United States, fewer than 100 cases per year.  Most affected children pass by 3 years of age.  Please browse my site and help me and my doctors research for a cure!  If Menkes is identified and treated in the first 10 days of life, the prognosis is significantly improved.  Please learn the symptoms!
Feel free to browse my site. (Check out my adorable photos on the guestbook page!) I hope you come back often.
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